New Diagnosis New Life?

When someone has told me that they had an experience that "literally changed their life", i always found that hard to believe. I find that most events in my life that could have been considered that were always made into memories that occupied shelf space in the library of my brain while i putted through life. Occasionally looking back and reflecting. 

This past Friday was surely an exception and an experience that completely changed the way i look at the world and life in general. Its in my professional opinion that having the feeling of dying will do that to you.

I was admitted into Mass General Hospital after being out at a show and having heart complications. 

I was with one of my best friends and her two friends seeing Mackelmore and Ryan Lewis at the TD Garden. That day was no different than any other. I worked in the morning, took a nap, ate food and then was off to get ready to pick up my friend and head into boston to get our tickets for the show. 

When i got there i was relaxed, excited and relieved. I had a really rough work week and it was nice to finally catch up with a good friend and be at a show. I have always found my happy place to be at a show or in nature and usually a show is more accessible. 

We saw the two opening acts and then halfway through Mackelmore's set (right after he played Thrift Shop) my friend noticed i wasn't moving around. The whole night i was dancing and wiggling (i swear i can't NOT dance when i hear music). Now this is where my memories get really fuzzy so this is my knowledge of what happened hearing it from my friend. 

I stopped moving around and stood there really taken back and she said that if she didn't know me better i would have looked overwhelmed by the crowds and claustrophobic. She kept asking me if i was alright and i responded multiple times saying "i feel weird, i feel sick, something isn't right". She said "okay do you want to sit down" and i said yes and bolted out of the general admission area, through the bleachers into the hallway. A little back drop here... i am almost 5'10" and my friend is 5 foot nothing so when i walk fast or run this poor girl is booking it to keep up with me.. and when i panic i run REAL fast. Anyways so i get to the hallway and sit down and my body is shaking pretty violently. Not to the point where i think it was a seizure but something for sure was not right. I wasn't really responding to any questions they were asking and i don't even remember anyone asking me anything. The EMTs arrived and starting poking and prodding asking my friend questions, asking me questions and i start to come out of whatever it was. I felt like my heart was going to explode. It was beating so fast and hard that i literally thought it was going to jump straight out of my chest. 

A week prior to this i consulted with a cardiologist because i was having episodes of heart fluttering or feeling as if it had completely stopped. Now anyone who has had any issues with their heart can understand what i mean by i was scared for my life. Now having body aches and pains, stomach problems, orthopedic issues i can all handle but when there is something wrong with an organ that determines whether you live or die by its normal function.. thats a whole other story right there. 

Once again this part is pretty fuzzy but they gave me aspirin to take after taking some vitals and i couldn't even fully control my arm and the pills flung off the wall behind me. We tried again and finally got them in my mouth. I was taken by the stretcher to the ambulance and off to MGH we went. 

Side note: Why are ER nurses either the nicest people you have ever met or condescending bitches? I mean yes i am aware i got a heart monitor to watch for these episodes and NO i didn't use it. Oh i don't know when you're not fully conscious would you have been able to reach into your bag and do that? I don't think so either.

After seeing three doctors a slue of nurses and attendants i was taken for EKGs, chest x-rays, blood work and more blood work (they mixed up the tubes the first time around and conveniently forgot to mention this to me until i asked to leave three hours later...). They gave me a blood thinner and did another EKG and then put me on an IV drip. I sat there waiting for answers for hours. After a while i felt fine and wanted to go home. And if you have ever had to tell a nurse that you wont wait for them.. well thats a whole other level of sass right there. So my friend and i had left now it being the following morning. TO HAVE MY KEYS LOCKED IN MY CAR. My friends friend drove my car from TD Garden to MGH so we could pick it up after (which i am very appreciative of) but he didn't know my car is from the dinosaur ages and doesn't work normally. So after calling security to come open my car and several failed attempts later, it was finally unlocked and we were on the way home.

Later on that day i woke up at 3 or so after that shitty night i had and my chest was beyond sore. I was calling my cardiologist and primary care HOPING they weren't closed for Veterans day so i could see them ASAP to get some sort of answers from these tests. Nothing.. noting nothing nothing. 

Test after test didn't catch anything and i felt like shit and i was scared out of my mind. 

My primary took some blood and i pushed him to test me for Lymes disease because one of my friends has it and has simular issues and they were already going to run some other tests since the blood thinner and IV fluids would have messed up my previous results. 

and on Thursday i got the news. I have borrellia burgdoeferi (Lyme Disease), ehrlichiosis and babesia microti. 

So now to play the game good news bad news. 

Good: This may be a possible answer to all of my health issues

Bad: This may just be another empty diagnosis and treatment that leads to nothing changing.

Good: This may be the cause to the heart problems and after being treated it could all go away.

Bad: The medication is known to be super aggressive and make people very ill before seeing any improvement. (If you want to read about the special sort of hell i am going to put my body through over the next few weeks/months/year(s) please read this  )

Good:This is treatable and curable but it will take years for all side effects to go away.

Bad: Caught this years after i would have been infected so the complications and treatment are significantly higher.

Bad: Treatments by Lyme specialists are extremely expensive and not covered by insurance past the prescribed medication.

Well it seems i have more bad things to say about this diagnosis than good but i am pretty optimistic that this will make a change in the way i feel and the way my body behaves. 

For the time being i am taking it one day at a time and seeing how it goes. 

I start my first day of medication today (Saturday, November 16th, 2013) so i will be sure to keep everyone updated on that.

Medicine Galore!

So i have been asked by many people about the specifics of my medications on a daily basis so i figured i would write you all a post!

So this is my current medication routine. I have previously been on other antibiotics, l-glutamine, and other enzymes and juices that are suppose to sooth my stomach. I just found this to be the best combination for me.

FIRST

So first thing in the morning when i wake up i take a probiotic. 

This medicine needs to stay refrigerated (as you can see in the picture i keep it in my guacamole drawer.. and yes i have a whole drawer of guacamole.) I take 1/4  teaspoon per day and it is in a powder form (i'll do this twice a day if i am feeling sick to boost my immune system). I have a starbucks cup i got for christmas that i use to drink it all out of since its a larger glass. I have found that sometimes the taste can be a tad weird so you just have to grin and bear it and add more water if you need to. Although this comes out more like little granules and doesn't really mix too well and DO NOT MIX WITH HOT WATER. The Ultraflora was made to break down in your warm belly so it gets really gross in your cup when you do that. If you can wait like 30mins before eating anything after taking this. Although in all reality i don't follow that because i wake up way too late all the time.. I take this and then get started on making breakfast which usually gives me about 15/20 minutes. 

Buy here

NEXT

I take digestive enzymes WITH my food. 

I take two of these pills every time i eat. I find that for me if i stop taking them or lower the dosage then i don't find it to be as effective. Now when i first started taking these i was advised to take 1/2 a capsule per meal (3x a day) to start then up them by 1/2 a capsule until i get to 2 per meal a day. I've heard from other people who tried diving right in that it bothered their stomachs especially if you already have a sensitive stomach. This i do like to mix with warm water because i find that the powder mixes easier. Now you can always swallow the capsules as well but i personally like drinking them better because i feel it working faster. Now if i was smart i would take it like 15 minutes before eating but again time management isn't really my strong suite. 

Buy here

LASTLY

I take apple cider vinegar WITH my meal. 

Sometimes i don't have the stomach to finish it before i eat so it does the same thing if you sip and eat. I do 2 tsp with about 16 oz of water before every time i eat. Now i personally like Bragg's vinegar because i'm all about it being organic and gfree and cheap. Just makes sure you mix well before putting this in your drink. Now i like to mix this in my big cup with my straw and just suck the whole thing down. I'm going to warn you.. This is for sure a taste you need to get use to. Because well.. its vinegar and not so tasty at first. I feel a huge difference when i skip the vinegar when i eat though so its 100% worth the temporary yuckness. I have heard from other people that cutting it with some organic apple juice or pineapple juice can help with the taste and make it more bearable but i would rather just water it down a ton. 

Buy here

TIPS

So i like to drink from a cup with a big straw for these (especially the probiotics) because #1 when you're chugging it down there is nothing splashing on your face and i find hat you get more of the probiotics when you use the straw instead of chugging it because it won't stick all over the walls of the glass. 

Gfree people- ALL OF THESE ARE VEGAN AND GFREE. I personally forget that certain medications have gluten in them and i love these ones

I do NOT recommend buying any medications from third party sites. Metagenics i purchase straight through my doctor's office but you can purchase it straight off their website. Digest Basic i buy from amazon and they have super fast shipping usually 2 days and i would only buy from amazon directly not another dealer through the site. 

And as always if you have any questions or post ideas send them to my email :)

Phillips.katie@live.com

June 25th Update

Hello everyone. So it looks as if i haven't really updated everyone on whats been going on for the past couple of weeks. It been crazy over here with all the weddings, graduations, birthday parties etc. 

So as the weather gets warmer this just means that it is the start of race season! My first (but certainly not last) mud race was the Ruckus run in Marshfield, Ma a few weeks ago. I did it with all my co-workers which was a ton of fun for everyone. This race is four miles long (the challenger) and has obstacles throughout. 

A super unflattering photo but i find it hilarious that i have daisies in my hair.. as you can tell i don't take these things too seriously...

I took some time to enjoy the nice weather and hang out by some pools.. (and that sushi in that container was awesommeeee. The sushi chef at Whole foods made me some rolls for myself without rice! Pretty sweet huh?)

Tequila lemonade and sushi poolside 

And then i spent some more time in a pool...

And somewhere in between there i remembered i needed to update my picture for bodybuilding.com and took this gem. 

June 21st, 2013 (174ish)

So as of a few days ago i weighed 173.8 which is pretty awesome. Although lately i've been getting frustrated that i'm not seeing as much progress as fast as i would like.. i do have to remind myself that this is all a process and that it takes time. And of course the universe sent me this gem so i can sit back and relax and see the progress take effect.

My goal is to be another 5 pounds down by the 4th of July or at the very least under 170 which would be the first time since high school. But if it were to mean that this is where i top out and that i'm healthy i would be totally happy. 

And sorry for the sort of lame post today i'm totally scatter brained!

Katie <3

Help me! I've been glutened and can't get up!

"I've been glutened"

For anyone living with celiac, gluten sensitivities or allergies i am pretty sure you are about to sit back and agree with everything i am about to say...

I have always had a love/hate relationship with any season that involves large family gatherings and parties because of my mucho complicated and ongoing issues with food. So naturally as we approach the end of spring and the beginning of summer it seems that my calendar is booked with graduation parties, weddings and baby showers every weekend.

So since this is the first year that i actually have a clue of what to avoid i feel a bit more prepared. As always friendly reminder ringing in the back of my head is constantly doing its job of showing me what horrors would happen if i eat any of my no-no foods.

Here's the usual set up: 

usually is a mis-mash of delicious looking and smelling "who-who-know-whats"in large pans with mystery sauces. And my even more favorite part of this whole event is the completely ignorant event staff or that uncle who has been grazing the table for the past hour and is telling you what everything is. Because we all know both are DEFINITELY reliable sources of information for those of us with allergies... NOT.

So i personally am yet to master the beast i call my hungry stomach and stick to what i know are more times than not safe foods.

Safe foods:

-Salad (usually dry with dressings on side)* Jackpot if the bottles are there to read!*

- I am still yet to find another solid option to put here... sometimes if you are lucky they will have burgers and other meats for the grill made to order. But for all my GFFs* you're out of luck :(

(GFF=gluten free fiends)

Iffy Foods:

-Potatoes. 

          I find that these are usually cooked in either butter or some sort of oil (vegetable/olive) with seasoning.            usually no obvious signs of wheat or gluten. I say this is IFFY because we all know gluten likes to surprise us sometimes..

DO NOT EAT:

-Chicken ... anything. Hidden in that sauce is only lord knows what.

- Any food with any sort of sauce.. 

So basically my best advice is to try to load up on goodies before you go somewhere with uncertain food choices. 

King Arthur GF cookie mix with Enjoy life non-dairy choco chips! Made by yours truly.

OR if possible bring a dish to share that is friendly to your dietary restrictions. I tend to always bring GF "chocolate chip" cookies because i LOVE LOVE LOVE chocolate. 

And then this brings me to my recent experience with these parties...

The past two graduation parties i got a little cocky and thought that since i asked what was in my mystery chicken dishes that that means that it was gospel knowledge at that point... Which as we have all learned the hard way is not true.

So i had to leave early those two times. Once because of some BBQ chicken deal (which in their defense was quite tasty until it settled) and some chicken in red sauce. 

And in case anyone wanted to know how i spent the rest of my afternoon...well i think you can get what happened there...

So lessons learned.

Don't get cocky

Stick to your safe foods (we all remember what happens if you don't..)

Bring appropriate back up food/snacks

Lastly in case you haven't seen this site yet: When i went gluten free Gifs

And yes we are all making those same faces as you are right now.

:)